Magic Wand Moment: Meet Erica Barnes

https://www.youtube.com/watch?v=C9CpDkdii0s

We sat down with Erica Barnes, Executive Director of the Minnesota Rare Disease Advisory Council, to talk about how lived experience can shape real policy change.

After losing her daughter, Chloe, Erica turned grief into advocacy — helping elevate rare disease awareness and push for systems that support the entire family, not just the diagnosis.

We talk about: Why Rare Disease Advisory Councils matter Shifting mindsets in healthcare What comprehensive care should really mean