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NEWS

Rona's FUN LAB was selected as the 2025 Innovation Network Gathering Next Step Honoree. This recognition, which was determined by a vote...

Thanks to your generosity, Rona's Rockin' Memorial Toy Drive 2025 was a huge success! We were able to double the value of the donation...

Today, children's hospitals around the country will celebrate Christmas in July.   During Rona's treatment, Santa brought Rona matching...

September 15, 2023 Last night, Rona Solfryd Edwards left this world the way she came into it: slow at first, and then in a flash. She was...

August 9, 2023 My updates have been spaced a bit more because we are still in a holding pattern. We did get some good news on the viral...

July 15, 2023 I've gotten feedback that my updates are generally quite positive and optimistic. Sometimes I don't share the hard stuff...

September 1, 2023 Yesterday we rang in Rona's sixth birthday. Earlier this summer, we were told this would be a day we may not see so it...

August 18, 2023 Medically speaking, this wasn't our greatest week. We still don't have cell counts, the viral counts ticked up again, and...

June 9, 2023 Rona officially engrafted on Saturday (Day 16), which means my cells have begun to make cells in her marrow! This week her...

August 1, 2023 I know I missed the update last week and a few of you have reached out to see what is going on in our world. The truth is,...

July 20, 2023 We wanted to let you know that the combination of prayers, reiki, healing vibes, holy water, novenas, mantras, etc., that...