Resource Directory
Search for rare disease, logistic, or quality of life resource for your families
Support your patients beyond the treatment plan.
When a child is seriously ill, clinical care is only part of the picture.
Families are also navigating financial strain, uncertainty, emotional stress, and complex decisions — often without a clear place to turn.
The Rona’s FUN LAB Resource Directory is designed to support both families and care teams by making trusted resources easier to find and share.
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Financial assistance and grants
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Emotional and bereavement support
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Patient education and navigation
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Quality-of-life resources for children and families
A simple tool you can use to connect patients with support, without adding to your workload.
Featured Resources
Here are some of our favorite resources for pediatric care teams. Check back and get in touch for more!
The Courageous Parents Network presents educational resources in an array of formats with a singular goal: to give parents confidence that they are being the best possible advocate for their child. Through this work and in partnership with clinicians, we seek to transform the care experience both delivered and received.
Our Resources
In this talk, Lindsey Wahlstrom shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. With six powerful ideas for reimagining pediatric research, she calls for a balance between the magic of science with the magic of life.