Rona’s FUN LAB is a nonprofit organization founded by parents who lived inside the pediatric healthcare system, and saw firsthand how much children and families are asked to carry.
Around the country this week, kids will dress up for the 100 Days of School celebration. Rona had big plans for that celebration in 2023. For her first Halloween, we had dressed Rona up as a crazy cat lady (her father and I were each cats), so we knew how to make the wig and had the glasses to sell the look on hand. The weekend before spirit week kicked off, Rona developed a high fever and was admitted to the hospital for the first of six times before our admission for trans
I had dinner with a friend the other night. One of her family members was admitted to the hospital with concerning symptoms a few weeks ago, and an ER workup revealed advanced cancer. As she described what her family has been navigating — the constant coordination of appointments, treatments, and second opinions — I was transported back to that same period three years ago, when we were living this reality with Rona. I know many of you can relate. Getting to a diagnosis, and t
